We went to see our wonderful Nephrologist (kidney specialist)
yesterday. According to the charts, Jaydon is growing! He has gained at least 2
pounds and just over an inch in height. This is excellent news as we’ve been
discussing the possibility of using growth hormones. Apparently, the switch in
medications this summer was the perfect thing. I’m so glad doctors can work
together to come up with a solution.
Jaydon’s labs look okay. Everything is stabilized and is
holding steady. They don’t look good, but they’re not horrific either. He looks
really healthy and seems to be doing well. We are still in the watch and wait
category, but we’re doing good so far.
All in all, it was a fairly good day with an incident that resulted in mom getting a new pair of pants (I'm not posting that event here, it is much too embarassing). This isn’t much of an update, but no news is good new
sometimes…
I’ve gotten asked this question several times over the past
couple of days so I’ll answer it here.
Question… Why don’t you just do the transplant now if he’s
gonna need it in the future?
Answer… It’s complicated. He’s technically not bad enough
yet. He has enough kidney function at the moment to maintain quality of life.
He sleeps a lot, but he’s doing good still. Because puberty is so hard on
internal organs, we’d like to get him through that milestone before we jump
into that frying pan.
Thank you all for your continued prayers and support.
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