Surgery & Test Details

What a roller coaster! We left early in the morning and fed on the way out of town. Almost instantly, I worried about one of the girls who seemed to be in labor – Really? It was 5 below! There was nothing I could do, so I decided to let nature take its course. AND… Nothing happened.

We were early getting to PCMC. We got all checked in and were taken to Pre-Op. Jaydon and Jay sat down and played with the Xbox. It was HILARIOUS! Jaydon kept hitting Jay’s shoulder “Stop it Dad!” and “Dad, you’re in my way!” I just sat there and chuckled.

The anesthiologists came to get Jaydon. He did great until they went through “the doors”. Then, he panicked. Poor kid. Jay and I went to eat lunch in the cafeteria. My sister Angi was waiting for us when we got back upstairs. She sat with us and we chatted while we waited for the phone call. The call came and I went into PACU. Jaydon was crying for mom. My heart melted. When I leaned over his  bed, he gave me an awkward hug and started screaming for his dad. Only one parent is allowed in PACU. Poor kiddo!  We spent about 30 minutes in PACU before being moved into PostOp. Jay was able to meet us. Jaydon clung to his dad’s hand. He was crying and telling his dad how much he loved him. He was in a huge amount of pain. After the Lortab kicked in, he relaxed and fell asleep. Jay was also able to catch a few winks.

We spent about 2 hours in the PostOp unit waiting for our 3 o’clock appointment for the CMG test. All the tests were completed and we got several questions answered. A normal bladder looks a lot like a balloon. It should be smooth and stretchy. Jaydon’s looks like and has the texture of crocodile skin. It is hard and lumpy. We also were able to determine that the sphyncter is what is causing the issues. His are too tight. They aren’t receiving the correct signals from the brain making it nearly impossible for him to relieve himself (either way) without some sort of assistance. It was determined that he will need some sort of assistance emptying his bladder for the rest of his life.

There was no reflux of the dye from the CMG into the kidney. That indicates that the valves and tubes(ureters) are functioning correctly. His kidney looks good but not great. We are still looking at a kidney transplant, but it won’t be happening “soon”. We are meeting with Nephrology (the kidney specialists) on Thursday. The next surgery will be sooner rather than later, but we don’t have a date yet. We’re still operating on “doctor time”. This surgery will involve creating a channel or a path into his bladder.

We’d like to thank everyone for their thoughts and prayers and kind deeds. The outpouring of support has been awesome and means so much to us as a family.